Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

I thought I had cystic fibrosis figured out. Growing up, I had challenges like a brutal morning cough that lasted for hours and a constant sense of fatigue, but I still felt like one of the lucky ones ...

A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.

Conversations about CF are rare in the Latino community, and many still don’t realize that CF affects Latinos, too. Cases are rising, yet they often go undiagnosed due to barriers to health care ...

WASHINGTON, D.C. (March 6, 2025) — On Monday, the Department of Health and Human Services (HHS) published a document in the Federal Register announcing rescission to a long-standing policy that ...

The Cystic Fibrosis Foundation is deeply concerned by the devastating impact that severely and suddenly limiting indirect costs will have on the CF research community and the United States biomedical ...

Sure enough, in April 1985, I was admitted once again and was tested for CF. The results came back positive, and I was diagnosed with cystic fibrosis. My parents were informed about the disease and ...