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DUCHENNE MUSCULAR DYSTROPHY: WHAT YOU NEED TO KNOW Duchenne isn’t “just” a muscle condition. It’s a life-limiting, genetic disease that slowly steals muscle strength - including the muscles needed to walk, breathe, and protect the heart. 🧬 It mainly affects boys 🦽 Most lose the ability to walk in childhood ❤️ The heart and lungs weaken over time ⏳ There is currently no cure But here’s what else you should know… Kids with Duchenne are funny. Clever. Determined. Dreamers. Gamers. Brothers. Sons.
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Raising a child with Duchenne Muscular Dystrophy means living in a world that never stops shifting beneath your feet. You’ve pressed pause on parts of your own life, rebuilt routines more times than you can count, and learned to navigate medical and support systems most people never even hear about. You’ve weathered transition: new equipment, new specialists, new stages of progression, and somehow you just keep showing up. You learn, you adjust, you make the tough calls with a mix of love, fear,
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